1st Annual Caterina Grace Walk for Life

Our 1st Annual Caterina Grace Walk for Life Event took place on November 18th at Belmont Lake State Park which featured a 2 mile walk around the lake. We also provided some light refreshments as well as some fun bounce house activities for the kids who participated.

This event hosted over 300 walkers and helped to raise an incredible $38,000!!! The proceeds from this event went directly to the Alan Beggs Research Lab at Boston Children’s Hospital which goes to researching targeted therapies for rare congenital myopathies. We are so grateful for those who took the time out of their day to come and join us that morning as well as everyone who donated their time, money, and services to make this event so special.

We had 26 businesses sponsor or donate their services for our 1st Walk and The Caterina Grace Foundation is eternally grateful to know such compassionate and altruistic people and businesses. Everyone’s support had a direct impact on improving the lives of other children living with rare muscle diseases as well as helping our foundation honor our beloved Caterina Grace.

Here are some of the businesses that sponsored:

St. Mary’s Children’s Hospital Tribute Dinner

On November 6th 2017, we were invited to the Annual St. Mary’s Children’s Hospital Tribute Dinner at Guastavino’s in New York City. We were asked to be the St. Mary’s key note speakers for the evening. Although incredibly difficult, we were honored to share our daughter’s story, speak about the loving care provided to them and their daughter from St. Mary’s hospital, and talk about their aspirations for the Caterina Grace Foundation.

The proceeds from the Tribute Dinner will help provide hope and healing to children and their families served by St. Mary’s Healthcare System for Children in the five boroughs of New York and beyond. St. Mary’s touches more children with special healthcare needs than any other organization in New York State through an integrated network of inpatient, home care and community programs.

To view and hear our speech please click on the link below: