The Caterina Grace Foundation seeks to raise awareness and funding to support targeted research to develop treatment therapies for Nemaline Myopathy.

Honoring Caterina Grace

It is with eternal love and hope that we announce the creation of the Caterina Grace Foundation. Through the foundation, we will honor Caterina’s memory and continue her fight with the expectation of creating awareness and improving the lives of innocent children affected by Nemaline Myopathy. Caterina is missed every second of every day; however, she leaves a legacy of courage, strength, love and hope.

About Nemaline Myopathy

Nemaline Myopathy is a group of congenital, hereditary neuromuscular disorders that cause muscle weakness, generally nonprogressive, of varying severity where severe forms show up to 66% mortality rates before the age of two. It is considered one of the most severe muscle conditions of childhood. Currently no treatments or disease modifying therapies exist for nemaline myopathy and few potential candidate drugs have been identified.

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