Slide Slide St. Mary’s Children’s Hospital Ribbon Cutting Ceremony for the designated Caterina Grace Ziniti Room. Slide November 15th, Caterina’s Birthday, is recognized in Suffolk County as Caterina Grace Ziniti Day
to raise awareness for Nemaline Myopathy.
Slide Our Board Members at our 1st Annual Caterina Walk for Life in Nov 2017.


Our Mission

The Caterina Grace Foundation seeks to raise awareness and funding to support targeted research to develop treatment therapies for Nemaline Myopathy.

Through the foundation, we will honor Caterina’s memory and continue her fight with the expectation of creating awareness and improving the lives of innocent children affected by Nemaline Myopathy.

Caterina is missed every second of every day; however, she leaves a legacy of courage, strength, love, and hope.

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